Why the Centers for Disease Control and Prevention Monitors Developmental Disorders

State Funded Organizations to Help Individuals with Developmental Disabilities A developmental disability is characterized as a chronic mental and/or physical disability diagnosed prior to 22 years of age, and impact activities like learning, mobility, language, independent living and self help. Good news is that such individuals can also live healthy, happy lives. The CDC (Center for Disease Control) monitors and keeps track of the population estimate of school aged children facing any type of developmental disabilities.

Several disorders coming within the periphery of developmental disabilities are:
· Cerebral palsy
· Autism spectrum disorders
· Intellectual disabilities
· Spina bifida
· Epilepsy
· Traumatic brain injuries
· Neurological impairment

 The CDC’s monitored results help in supporting the funding of state and local schedules conducted especially for developmentally disabled children. Such children usually need financial assistance, and also medical and educational services throughout their lives. CDC makes the going more productive and healthier for them by conducting specific schedules. DDD NJ since its origin in 1959 has grown significantly and is funding services to thousands of individuals facing developmental disability. The DDD NJ provides funding for facilities like community residences, group homes, and supervised apartments to the eligible individuals. Capitol Care, Inc. is funded by the Division of Developmental Disabilities in New Jersey. Capitol Care in New Jersey and Alabama aim to meet the comprehensive behavioral health needs of individuals with developmental disabilities. They believe that mental health plays a crucial role in an individual’s quality of life and hence has developed a comprehensive recovery program for individuals having developmental disabilities and/or mentally illness. Using the strength of the individual, this agency tries to enhance his/her personal development and aims to achieve the highest level of wellness possible.

 In New Jersey, Capitol Care offers residential treatment in natural surroundings. Individuals enrolled for their developmental disabilities get therapeutic, clinical and person centered residential treatment from a caring and skilled team. The staff is well trained in the different clinical areas needed to provide assistance in the health and well-being of the individuals. It aims to make them independent through its compassionate, patient, dedicated approach. Its focus is on helping the individuals to develop skills in personal development, life management, goal setting, and community integration.

 To request more information about screening, eligibility and admissions at the New Jersey, visit www.capitol-care.org and www.capitolcaresouth.com for Alabama.

How the New Autism Safety Project can Affect You and Your Family

Personal Safety is a primary concern for those with Autism Spectrum Disorder (ASD), as well as for those around them, whether family, friends, or the general public.
In New Jersey, Capitol Care integrates safety in its residential care programs. It advises families affected by Autism to incorporate it into their own daily activities to ensure that everyone remains safe. Below are some safety tips that can be used by those providing care to persons with Autism:

Safety in the Community
For those families who care for a member with Autism at home, going out into the community can sometimes be challenging. Behaviors accepted at home may not be generally accepted in public and may bring about unwanted and unanticipated results. Family members are the best advocates to prepare themselves and the individual with Autism for forays into the community. Those that work with the person with Autism, such as school personnel, daycare providers, neighbors, caretakers, and extended family, should gather to discuss possible scenarios and plan appropriate actions. Some resources, such as the Autism Safety Project, will directly address strategies to help individuals with Autism get transportation, ask for help, use public restrooms, interact with Law Enforcement, deal with cellphones and money, play in the neighborhood, and avoid victimization.
Safety in the home
Accidental injury in the home is potential for everyone. The Autism Safety Project offers a workbook and video designed for parents, older teens and young adults called Safe Signals. It focuses on burn and fire safety and incorporates the use of vinyl clings to reinforce safety messages in every room of the house.
Sexual Abuse
The prevalence of sexual abuse and violence among young persons with disabilities is higher than among those without disabilities, making those with ASD an especially vulnerable population. Some expert advice would include:
• Talking about sexuality with family members
• Preventing sexual abuse
• Recognizing the warning signals of sexual abuse
• Getting help for victims
Information for First Responders
Educating family members to respond productively to various events involving those with ASD is the first step. The second step is to educate those who might respond to an incident involving the family. These might include fire fighters, Law Enforcement, 911 call centers, emergency medical personnel, search and rescue personnel, judicial system employees, and teachers and administrators. Working with people with Autism is not necessarily an issue addressed in their professional training so it is a good idea for families to proactively provide training resources for those who might come in contact with the family during an emergency.




For more information about safety suggestions and tips for families of persons with Autism NJ contact, Capitol Care, Inc. would be able to point you towards the best resource.

New Proposed Updates to the Definition of Autism

An estimated million plus adults and children have been diagnosed with autism or a similar disorder. The proposed definition adjustments are slated to consolidate three different disorder diagnoses under the same category: Autism spectrum disorder – which would eliminate both:
• P.D.D.-N.O.S. (Pervasive Developmental Disorder-Not Otherwise Specified); and
• Asperger syndrome from the D.S.M. manual.
The panel is faced with the challenge of where to draw the distinction between abnormal and merely unusual behavior. The decisions made will impact not only the people evaluated by the new definition, but a great number of social, medical and other health professionals.
Under the current autism definition criterion, qualification for a diagnosis requires that an individual exhibits at least 6 of the listed behavior criteria. The new autism definition requires an addition of 5 more aspects:
• At least 6 or more of the 12 listed behaviors;
• At least 3 communication and social interaction deficits; and
• A minimum of 2 repetitive behaviors.
There is concern by social activists that the new autism definition, which proposes far narrower parameters, will drastically affect how those struggling with symptoms will receive, without undue discrimination:
• Education
• Services
• Treatment; and
• Social service benefits they require.
In fact, some doctors believe that new changes could severely curtail the autism definition such that it will ultimately end the surge of diagnoses.


Experts at the Psychiatric Association have reportedly expressed that they strongly disagree about how the proposed changes will impact society. Those organizations serving persons with Autism have been advised, through the panel’s previous projections, that the definition changes would actually cause far fewer people to be excluded. This contention, however, has not yet been confirmed.
It has been 17 years since a major revision has been done on the manual that drives the treatment, insurance and research decisions of mental illness. Providers have learned that most experts believe the autism definition revision may greatly narrow the criterion for what constitutes autism.
While the new analysis is preliminary, many autism providers believe that the new proposed adjustments to the official meaning of autism could drastically affect the rate at which, and ultimately the number, of people who are diagnosed with the disease.

The new autism definition could incite some heated discussions, as millions of people receiving state-funded services could find themselves affected by new decisions as to eligibility. Proposed changes could exclude those diagnosed in the higher functioning category.

Disagreement about the actual effect after the new definition is finalized is expected to increase scrutiny of the psychiatric association panel’s proposed adjustments to the D.S.M. Autism NJ providers have learned that the revisions are slated to be completed and finalized by December of 2012, and published in the spring of 2013, according to a spokesperson for the University of Pittsburgh.

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Capitol Care, Inc. in NJ and Capitol Care South in AL are agency's that provide Autism NJ and Autism AL services to those with Autism and their families. Capitol Care, Inc. and Capitol Care South are a distinguished name in behavioral health programs and services.

What About The Siblings of Children with Autism?


Children that have a sibling with autism in NJ may show any broad spectrum of attitudes on their relationship, and research has shown a variety of reactions of the siblings. How a sibling reacts often depends on where they fall in the birth order, the severity of the disorder, and general family behavior. 


A parent would love for the siblings to develop a strong bond, but it could be difficult to develop that type of a relationship. A child with an autistic disorder will demand special attention from the parents, and so the siblings may often compete for that parental attention. There is the possibility of tantrums and unexpected behavior from brothers and sisters of children with autism. However, one of the most positive things that siblings can learn is empathy and understanding at an early age. 


Positive and enduring relationships can most certainly develop between children with autism and their siblings. To best accomplish positive relationships and outcomes, a family must focus on open communication among everyone involved.


1) Jealousy is expected


It’s natural for a child to be jealous of the amount of attention given to an autistic sibling. Parents must reassure the child that thoughts of anger and embarrassment will run through their mind toward their autistic sibling and they shouldn’t feel guilty. You must explain that this will happen, but they will also begin to understand why this occurs and they will learn how to handle unique situations.


Some parents have enrolled their children into autistic sibling workshops where they can meet other children living under the same circumstances. Quickly, they will understand that they aren’t alone. Remember, some children may never connect with their autistic sibling, as they cannot handle witnessing tantrums and unexpected public outbursts. Usually, this type of a relationship turns out to have more compassion and care than an average sibling relationship.


2) Getting Siblings to Relate to One Another


Parents must find ways for siblings to relate to one another. Often, finding shared interest could be something of a simplistic nature. Once you find that common interest, then it’s your job to continually nurture and foster this relationship.


Also, don’t forget to set time aside for some personal one-on-one contact with all of your children. Developing a hobby with them is a great way to share private moments with them. 


3) The Outspokenness of Your Child


Expect your child to become more outspoken and outgoing than other children of their age. Often, they will announce to strangers that their sibling has autism and they have special needs. In certain circumstances, they will become an "expert" in explaining their sibling’s behavior.


Other children will find it tough handling the added responsibility of helping to care for an autistic sibling, as parents must judge what role each child will play. Help them understand that their help is grateful, yet remember they still must live their life as a child.


Parents should only initiate conversations with their child on the future care of the autistic sibling once they’re mature enough to understand such a dialogue. Some will grow up and devote themselves to careers in autism awareness and research development to help find a cure for this disorder. 

Developmental Disabilities Services in NJ and AL - What Is Available

Coping with developmental disabilities can be very difficult. Having to send a loved one to receive extra attention is something which needs to be weighed with a great amount of thought and rigor. When you’re faced with this prospect, you should choose a trusted name that is going to let your loved one move at their own speed to optimal recovery. DDD NJ and Behavioral Health AL destination, Capitol Care and Capitol Care South are a distinguished name in behavioral health programs and services.
  • Philosophy
Capitol Care has facilities in New Jersey and Capitol Care South in Alabama. At both locations the treatment philosophy is simple; to help every individual take ownership of their life by empowering them in their recovery. Whether it’s out-patient treatment, residential care in their New Jersey facility of a lifelong condition, or other treatment, the team at Capitol Care looks at everyone as individuals with their own story. This breath of individualized care is a refreshing and upbeat attitude towards those with developmental disabilities.
  • Core Beliefs
The core beliefs guide the mission of Capitol Care and Capitol Care South. It’s these values which allow individuals to harness their own strength and re-discover life. These core beliefs include informed choice and empowerment; two things which individuals and their families receiving their care cherish. Another important core belief is that inclusion is the right of all people. This attitude is reflected in Capitol Care’s success. Finally, the team at Capitol Care strives to achieve responsible and flexible supports with outcomes. Capitol Care and Capitol Care South want all individuals to be able to live their lives with happiness and independence.
  • Residential Services
Having to choose a residential services provider for your family member can be tough; you want them to be taken care of the same as they would at home. People of all ages with developmental disabilities often need special care. You want to be sure that the space your loved one will be living will work towards their recovery and happiness in living out their days.
Capitol Care has DDD NJ residential services located in a natural setting for the developmentally disabled. Their setting offers patient focused care for all their residents. With up to 24 hour staffing and a hands on approach to daily living, the Capitol Care team has been instrumental in creating individualized paths for residents with developmental disabilities. In a safe and secure setting, the therapy and treatment teams help set realistic, attainable, measurable goals which each individual can look to and be proud of.
  • Adult Day Services
The adult day service portion of treatment at Capitol Care provides DDD NJ approved treatment for folks with developmental disabilities. Monday through Friday from 9AM-3PM individuals are assigned with a clinical specialist who will help them develop skills in community integration. Adult day services treatment at Capitol Care assists individuals in personal development, life skills, and goal setting.


What Exactly Are Developmental Disabilities? DDD NJ Tips

Developmental disabilities are chronic birth impairments that manifest among people at any stage before the age of 22. They may be physical or mental issues that will weigh down a child’s intellectual ability, social interactions and behavioral skills. There are varying degrees of developmental disorders, ranging from mild to severe conditions. Many of the symptoms rather than the conditions themselves are treatable.

Individuals with developmental disabilities can still lead a productive, rewarding, and social life if they receive special individualized attention. New Jersey residents should be able to benefit from Capitol Care, a DDDNJ (Department of Developmental Disabilities, New Jersey) certified behavioral health agency that cares for those diagnosed with chronic mental impairment.

Below are some of the most common developmental disabilities:

Autism
Persons with Autistic spectrum disorders will exhibit unusual interests, language delays and poor social and communication skills along with low intellectual ability. Asperger Syndrome is a milder form of autism characterized by poor motor coordination and impairment in behavioral and social interactions.

Cerebral Palsy
Those with C.P. have low muscle movement and coordination. Other signs include pain in the joints and muscles, abnormal speech, intellectual disadvantage (for some), and seizures. The condition may occur before, during or just after birth due to extreme malnutrition, health trauma, brain injury, or infections such as meningitis.

Intellectual Disabilities
These are usually as a result of chromosomal and defects such as Rett syndrome, – common in girls – Fragile x Syndrome, and Down syndrome. Children have a hard time learning and communicating, and their general development is much slower compared to other kids of their age.

Spina Bifida
Spinda Bifida is caused by the inability of the spine to completely close during the first month of pregnancy.  They are often paralyzed and require wheelchairs, have trouble swallowing and may be impaired in their learning.

Epilepsy
This condition may be caused by traumatic brain injury at or before infancy and could be chronic or treatable. Persons with Epilepsy are faced with unpredictable, random convulsions, in which they breathe and shake violently, posing great danger to themselves if eating or operating a machine.  

Capitol Care has a specially-structured treatment program that caters for each individual’s needs as diagnosed, and include special schooling and peer support programs to enhance trust and the support needed for recovery and social fulfillment; all this in a safe environment. Their ultimate mission is to promote self-determination and the well-being of these individuals to help them live to their full potential.

Autistic Kids Grow Up - Then What Happens?


PEOPLE WITH AUTISM REQUIRE CONTINUING CARE

One of the most difficult decisions of a family with a child with autism is how to adapt as they grow older. 

An individual with autism must deal with the same language issues, repetitive behaviors and difficulty dealing with social interaction they faced when growing up. Some people with autism make progress after intensive physical and behavioral therapy, but many struggle with basic activities on a daily basis. Most of them need some kind of help for their entire adult life.
Life is more difficult for individuals with autism who find routine activities to be challenging and have problems dealing with anything that is unfamiliar. Many parents worry what will happen to their children with autism after they are gone.

The Centers for Disease Control and Prevention estimates that one in 110 children has an autism spectrum disorder. While there are programs to help them as children, there is less help available for individuals with disabilities once they become adults. Most government-sponsored therapeutic programs end when they turn 21, leaving them with few choices. There are few residential facilities available, but fortunately things are beginning to change. Awareness of autism has grown exponentially since the early 1990’s thanks to the Internet and better knowledge of the disorder.

Capitol Care, Inc. in New Jersey offers several Autism NJ programs designed to help people facing Autism as well as other developmental disabilities and mental illness in their state. Through the New Jersey Department of Human Services, Division of Disability Services, Capitol Care, Inc. has an innovative residential program that allows individuals with disabilities to live in a comfortable and safe environment. The trained staff provides hands on supervision while setting realistic goals.  

Capitol Care, Inc. also offers adult day and individual support programs in New Jersey aimed at helping individuals with disabilities live in an independent environment. All services provide education in setting personal goals and development, including life skills and management and community integration. 

What makes these programs more effective than past efforts is the emphasis on assisting people with autism set specific goals. Therapeutic services cover the kind of life skills that can help an individual with disabilities develop independent skills such as shopping, cooking, and hygiene issues.

More agencies are launching programs like the “Transition Tool Kit” by Autism Speaks, an advocacy group. The service deals with housing, employment, and available public benefits.
When it comes to employment, a person with autism can perform a job that involves repetition quite well. Many have found success in these type of jobs and become solid contributors to society.

Increased awareness and studies are leading to a better understanding of autism and what can be done to improve the lives of people with the disorder. 

For more information, please visit www.capitol-care.org or call 973-426-1447.